The People.co.uk cover the story of Jodi Smith, a Cystinosis sufferer, and her brave decision to have a baby. For the full story see ThePeople.co.uk.

We are pleased to announce that our fundraising total now stands at a magnificant £133,053.63. This total has been raised by the hard work of many individuals giving up their time and talents to help… Fundraising Update

30 friends of the Grier family, in the USA, organised a fundraising evening in honour of Holt Grier who suffers from Cystinosis. An unbelievable $75,000 was raised during the night through auctions of items gifted… Hearts For Holt

It’s now only two and half months until the bi-annual International Cystinosis Conference in Dublin. The conference is a chance for both families and professionals to meet, chat, learn and share experiences, and a full… International Conference

2-year-old Holt Grier suffers from Cystinosis. His parents have started Hope For Holt, an organisation working with the Cystinosis Foundation USA, to raise awareness of Cystinosis and money for research. Recently their story was highlighted… Finding Hope for Holt

On 29 December 2007, Alana Munro and Emma Robb celebrated their 21st birthdays at a joint party at the Pitfour Arms Hotel in Mintlaw. However, instead of receiving presents, the two birthday girls requested that… 21st Party Raises Over £500

We are pleased to be able to start 2008 with the news that CLIMB has won an award of £10,000 from the Royal Bank of Scotland/Daily Mail Children’s Charity Awards. Every year, the Royal Bank… CLIMB wins £10,000!!

2007 has been a remarkable year for the Cystinosis Foundation UK – put simply we achieved one of our most ambitious aims to date, when in February we succeeded in raising £100,000 for the funding… Merry Christmas 2007

We are pleased to announce that our latest newsletter has just been released. The newsletter is free to our members and details recent activities regarding the Cystinosis Foundation UK, Cystinosis and related news. If you… Newsletter Release

Back in May of this year, over 100 pupils from the Lawrence School of Dance in the North East of Scotland put on a two-night event at the Peterhead Community Centre in aid of the… Dance Show Fundraiser For Cystinosis