Cystinosis Foundation UK supporter Amy Mace recently organised an ambitious charity quiz night. In addition to a quiz the event also included a raffle with generous prizes donated by local businesses. It took place on…
We would once again like to thank Redcar and Cleveland’s Mayor Councillor Brenda Forster for choosing Cystinosis Foundation UK as one of her chosen charities, along with the Great North Air Ambulance Service (GNAAS). Mayor…
A new research paper has been published as a result of the work undertaken at the University of Sunderland to develop a prodrug for the treatment of cystinosis. Cystinosis Foundation UK has been able to…
Huge congratulations to Anne McQuitty, of West Linton in Scotland, who has completed her 60 for 60 running challenge. Anne , already a keen runner, decided that she was going to set herself the challenge…
Nikki Wood is once again selling hand made Christmas cards on eBay, with all proceeds being donated to us. They are being sold by auction so bid now before it’s too late! [auction-nudge tool=”listings”] …
Ami Froehlich organised a ‘tuck shop’ at her work, selling snacks and lunch time treats to colleagues from mental health and learning disability services based at Ormskirk hospital. Since starting the shop in April 2015…
Iain McGilvray has raised over £17,000 for Cystinosis Foundation UK by completing a gruelling “Tough Mudder” event in June this year. He had to endure mud climbs, ice baths and even electric shocks! Iain decided…
Scott Hutchison, who is a member of Scottish indie rock band, Frightened Rabbit, has auctioned his Fender Jaguar ’65 American Vintage guitar on eBay, raising over £1,300 for Cystinosis Foundation UK. Scott and the rest…
Cystinosis Foundation (based in the USA) have announced that the next international cystinosis congress is to take place at the Barcelo Valencia Hotel in Valencia, Spain between the 30th June and 2nd July, 2016. Valencia…
Derby Moor student Eeshar Seehra was thrilled to achieve 3 A Levels in Maths, Physics and Media. What makes this an exceptional achievement is the fact that he has the rare inherited disease Cystinosis. Despite…